Topic: PDA video

Hi
Just thought I would let you that I have placed a video on Youtube giving an introduction to PDA.

http://www.youtube.com/watch?v=z_ZDdyMDCa8

As time permits I hope to add more.

Neville

http://www.youtube.com/user/bluemillicent  an evolving video resource for PDA

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Re: PDA video

Wow.
That was just perfect!
I could never be that calm and composed.

Can we use it for the front page, please? All acknowlegements in the proper place, of course smile

Thank you so much for the link to the site. Very grateful x

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Re: PDA video

Hi maisy,

am happy for video to be put to any good use. I am just trying to play a part in getting the message across. i know when I first learned of PDA, I was hungry for as wide a range of resources as possible. I am also aware that different media are useful for different people.

Neville

http://www.youtube.com/user/bluemillicent  an evolving video resource for PDA

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Re: PDA video

Hi
just to let you know the video catalogue is growing.
http://www.youtube.com/user/bluemillicent is the link to my channel.
As always will look to you for review, if you think anything is not up to scratch please let me know.
neville

http://www.youtube.com/user/bluemillicent  an evolving video resource for PDA

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Re: PDA video

Hi just an update,

I now have 5 videos on youtube, the latest two 'Does my child have PDA?' looking at the diagnostic criteria and a personal account of the pre diagnosis story for my son. Hope they will be of help and/or of interest.

neville

http://www.youtube.com/user/bluemillicent  an evolving video resource for PDA

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Re: PDA video

Hi Neville, I found your clips on YouTube before I found this forum, and sat glued to each one, especially #3 which I watched three times over.  I was just stunned; you are describing my child, not exactly, but about 90%.  The things that do not match are due to other difficulties he has, so if you don't count those, then it was him to a tee!  He is also ten by the way.

How on earth did you aquire this level of knowledge and understanding of PDA?  I had never heard of it until a few days ago.  My son does have an ASD diagnosis, however.

There is really very little info on the web ,and entirely zero if you search New Zealand sites(where I am).  Has PDA even been offically "accepted" by doctors as a diagnosis, and are there diagnostic criteria for it?

While your info gave me new found empathy with his level of anxiety (I had always suspected this was the case) I still felt like blowing my top when trying to get out the door this morning.  Some habits die hard I guess.

I have had several doctors actually send me on parenting courses, and tell me to my face I am not in control of my son (despite the fact I too have another child, who is typical in every way (and knows how to behave).  I have read numerous parentling books, researched, done all those courses...   to no avail.  Even my closest friends cannot truly comprehend what we go through, much less the casual bystander!

On one memorable occasion a pshychologist told me "of course behavioural approaches will work if you stick to it.  Animals are trained in that way and I'm sure your son is more intellegent than an animal".  I could never understand why rewards, bribes, punishments, the carrot and stick approach just did not work.  Not even chocolate or sweets work - he doesn't even care for them! 

We have just absolutely been through the mill - as I'm sure you have.  Thank you SO much for posting this information.  I am very grateful.  Now what I want to know is how to manage my own response to his infuriating habits.  I am an ordinary, sane, positive and upbeat person, but honsestly some days I am at my limit.

I look forward to discussing further, and hope some other parents will materialise smile

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Re: PDA video

Hi Louise and welcome,

thank you for your comments, I am glad to hear the videos have done the job I intended.

In the Uk PDA is still some what controversial, most of the debate seems to revolve around the questions of it relation to other Autistic spectrum disorders. Some argue that PDA behaviours can be explained by accepted and established models of atypical autism (PDD-nos) pointing to the fact that high anxiety and a degree of demand avoidance is not uncommon in aspergers and classic autism. Others see PDA as a autistic subtype while yet others see it as a disorder separate from, but related to, autism.
Here an increasing number of professionals do recognise the legitimacy of a PDA diagnosis, but is a bit of a lottery depending which individuals you are refered to. PDA is a low incidence problem and as a consequence has not attracted much research interest, but this is changing. Hopefully as more academic papers are published it will be harder to refute the evidence for more universal recognition.
You ask about the diagnostic criteria, I cover these in videos #4 and 5, but you will also find them here on the main website. Go to the home page and click the link on LHS. "diagnostic criteria".

PDA still has not found its way into any of the official diagnostic manuals, although it is now recognised by the National Autistic Society and markers for PDA are recorded in DISCO ( diagnostic Interview for social and communication disorders), i do not think this tool is used outside of the uk.

Personally I do not have to much time for arguments about the classification of PDA. Does it really matter if it is a particular presentation of autism,a subtype or a unique disorder?
I am sure my son is not bothered, but treating and handling him with PDA strategies really does work.

A professionals snap shot of autism is that these are individuals ( who amongst other things) cannot see the bigger picture and are too focused on detail and minutia, I can't help wondering if this is not infact a self diagnosis!!!!!

I do not believe I have any great expertise in PDA. Once anyone understands the anxiety and causes for demand avoidance much is little more than common sense. I have spent a lot of time reading about autistic theory and I find this helpful for shaping my view of the mindset and processes. I would certainly recommend researching the theory of Weak Central Coherence, as I have found this insightful and explains the 'autism' I see when my son is under a demand. It is my view/take that PDA is like a switch that turns on autism in demand or anxiety situations. When free from demands/anxiety my son not only appears 'normal', but I believe actually is 'normal'.

I am sorry , but not surprised, to hear you have been accused of bad parenting. What exactly is it that professional do not get about the ineffectiveness of sanctions and rewards? If you stood me at the edge of a cliff on a windy day, no amount of money, incentives or consequence would take away my fear and unease at being close to a 400ft drop. Afterwards, once away from the risk, I might be delighted with a reward or displeased with a sanction, but neither would have any impact on conditioning me against future cliff top apprehension.
I do not think this means we have to dispense with sanctions/ rewards and believe they should still be part of the armoury. Certain behaviours will have consequences good or bad and I do not think we can hide our children from these, but as a tool for instruction and motivation they are ineffective and often make difficult situations worse.

Please don't feel alone in failing to handle you son as you should 100% of the time, 24/7. I accept that this is not possible. I think that by deffinition, there are many scenarios in which any approach is the wrong one or our kids will ensure that we have picked the wrong one. I think we also have to remember that at times there are things that we have to do to presserve our own sanity. Living with PDA is not about curing or having all the answers all the time, but about managing situations and balancing everyones needs in the family unit.
neville

http://www.youtube.com/user/bluemillicent  an evolving video resource for PDA

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Re: PDA video

Yes, it certainly is a balancing act - and so exhausting always trying to think ahead and be one step ahead of any situation or probelm that may arise, so that one might intercept or deflect it!

I hope some of the many people who have viewed this site will come out of the woodwork and join in a discussion.

Thanks again, Neville.

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Re: PDA video

Hi

I have uploaded a 6th PDA video-    Education and handling.

http://www.youtube.com/watch?v=LIl0Lq0DM8Y

It is only the first part, but i am hoping this slightly more professional video will be useful for schools.

neville

http://www.youtube.com/user/bluemillicent  an evolving video resource for PDA

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Re: PDA video

I am a new foster carer and my first young person has very challenging behaviours which have until now gone undiagnosed or addressed in any way although he is almost 18.  He is a cross-dresser and cannot deal with any subject relating to real life or responsibility and deflects all attempts of discussion on such matters using various types of diversion including changing the subject, ingoring everyone, tantrums, deal-making and talking over everyone.  He acts like and believes himself to be a celebrity.  He constantly seeks attention of any sort without regard or awareness of risks.  He is very intelligent though has been unable to complete many formal qualifications and school reports all attest to disruptive and attention-seeking behaviours rather than ability.   He constantly throws tantrums to get his own way. He has been displaying these traits since he was approximately 6 although in his teens there has been escalation particularly relating to his gender identity.  He appears to live in a theatrical and fantasy world which in the past 3-4 years has developed into dressing in female clothing and assuming female personas.   Physically all is well with the exception of his hearing as he constantly complains he cannot hear tv, phones etc.
Luckily for me my sister is an autism practictioner with several years experience under her belt.  After a few social meetings with this young man and closely observing his behaviours she felt he was displaying traits she'd covered in some of her training and brought your website to my attention.   It's like a light going on.
This young man is due to be assessed by his new GP this week and has an appointment later this week for a psychiatric evaluation.  I will present the information contained within your site to my GP with a hope for a referal to an autism specialist. My GP is very forward thinking so hopefully this need may be met. 
I will update accordingly.
H

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Re: PDA video

Hi and welcome,

I have to say that I really admire any person prepared to be a foster carer. I am sure that it can be immensely rewarding, but I do not envy the steep learning curve you must find yourself on. It is hard enough getting your head around the special needs of a child as they grow and develop, but to have to learn it all in an instant sounds nearly impossible.
However, it is a testament to your willingness to learn that you are already seeking answers. I am sure that with your support and valuable input from your sister, you will be able to make a difference for this young man. I hope that we perhaps may also be able to help.

regards
Neville

http://www.youtube.com/user/bluemillicent  an evolving video resource for PDA

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